Still Plodding On – Just!

I have been struggling for quite a while and I have been in what feels like a year long hibernation.

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I have been working hard on trying to gain control over my symptoms and start to recreate a world from the dusty, smashed pieces of my life left behind after my relapse couple of years ago. However, I have hidden from my blogging in spite of the comfort it used to bring me as I felt like a fraud. I wanted this blog especially to be a positive space but for well over a year I have found little to be positive about despite my best efforts. I have also been struggling with accepting the physical damage that my relapses has brought on over the past decade and I have not been able to look in to any mirror bigger than a compact size without crying, and or, having a panic attack. Due to this insecurity I felt I could not talk about makeup etc. I felt, and to be honest still feel, ashamed. I feel I have failed in life and this time I felt I could no longer mask it with makeup and positivity, so I hid away.

I still don’t want this space to be a whining list of little miseries and self indulgence but I also want to be honest about the challenges of having multiple chronic conditions. I have avoided writing about this last year as it still very painful to admit and examine and I am still worried about how people would react when I have to admit that I have been struggling, that I am not as strong or as OK as people think I am. I am still worried about not being strong enough, of failing. When I am struggling to get dressed or brush my hair I do feel like I am failing like being ill is my fault that it represents my failing, my weakness. I know that it is not logical to think that way, that no one asks to be ill and that illness is not a fault or failing but the weight of chronic illnesses can drag you down into those murky thoughts and make you feel that you do not deserve to be around, to be seen.

I have had another biggish flare a few weeks ago and I am fed up. Fed up of waiting for things to change. I want to move on and I want to get better and I want to start re-engaging with the world again, so I thought I should start back in a space that I have felt comfortable and surrounded by diverse and understanding  people. So I hope to keep posting and start trying to be me again. So hello to those of you kind enough to read this and I hope to start posting in my usual way again. I may be in pieces but hopefully I can start to put them into a new beautiful picture, a mosaic if you like -cracked but just about holding together. x

Learning to be social

Our world’s can become very small we are burdened by chronic illness and people can seemingly drift away from you as you become increasingly confined to your house or bed. It can be lonely, frustrating and incredibly dull! As illness and pain snatch you further indoors the world can seem so distant that it can become alien. When your bed becomes your world Earth may as well be in another galaxy. I had no knowledge whatsoever of social media and only really used the computer for shopping and typing. Technology baffled me, I only opened a Facebook account a few years ago and did so reluctantly.

I am naturally a shy person who feels awkward in many social settings so I feared that as there are much more people online I would find loads more people to be awkward around and 100 more opportunities to make a fool of myself. But in January I became sick of being excluded from conversations and wanted to connect with others. I was and still am often confined to bed so the only course open to me was to use the internet to reach out. I had zero knowledge of social media but after looking around I thought blogging would suit me, so one restless night searching for a distraction from the pain I made my first post.

Blogging has been such a source of comfort for me these past months. I love writing and always felt more comfortable in that medium than any other so I’ve felt less shy and felt more comfortable to express myself. And blogging, best of all, has brought me into contact with some incredible people. As I’ve enjoyed blogging so much I started to think about other social media sites as I know many of you bloggers out there have several other links on your blogs to Twitter etc. My knowledge of how such sites work and how best to interact with them is very poor but I decided to give them a go. I warn you that I have no clue what I’m doing but if you would like to follow or contact me any other way there are some social media icons at the side of this page you can click or you can click these links below or on my About Me page.

Twitter: @moderngirlsick

Pinterest:  https://www.pinterest.com/elliesimaginary/

Instagram: https://instagram.com/elliesimaginaryfriend/

My blog will always be main focus but I thought it might be fun to branch out a bit. x